Linkage between routinely collected hospital birth and other records offers the potential for epidemiological and public health research by developing population-level birth cohorts with lifelong follow-up. In a paper published in the Journal of Public Health, Jo Murray and colleagues from Imperial College London examined the range and completeness of birth information recorded in Hospital Episode Statistics (HES) and tested an approach for minimizing the effect of hospital-level variations by selecting hospitals with high completeness of recording (≥90%) for key fields. The authors reported that the proportion of missing data in key birth record fields such as gestational age and birth weight has been decreasing annually (from 46.2 and 43.9% in 2005/06 to 18.1 and 16.9% in 2009/10, respectively). There was however a wide variation in the completeness of recording between hospitals. The authors concluded that the completeness of recording of hospital birth information varies greatly between hospitals in England but is improving; and that it may be preferable to construct cohorts from only hospitals with high completeness of recording.
As part of a session on primary care data in the Health Informatics module on the Imperial Master of Public Health Programme, I asked students to work in two groups to present arguments for and against the NHS Care.Data programme. Care.Data is an NHS programme that will extract data from the medical records held by general practitioners (GPs) in England. The Care.Data programme takes advantage of the very high level of use of electronic medical records by GPs in England. After extraction, data will be uploaded to the NHS Health and Social Care Information Centre (HSCIC). The data will then be used for functions such as health care planning, monitoring disease patterns and research. The programme has been controversial with proponents arguing that the programme will bring many benefits for the NHS and the population of England; and opponents arguing it is a major breach of privacy. You can view the two presentations to help inform you further about these arguments: Arguments fo...
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