New forms of communication have much to offer, and can help to improve the relationship between doctors and patients, as well as making patients more informed about their health and illness. In my own medical practice, we now offer online access to medical records and patients are starting to use this, particularly for ordering prescriptions and booking appointments. But there can also a downside to new technology, as shown by the recent incident of "bleachgate", which illustrates some of the problems that can arise from the use of these newer methods of communication, such as social networking. In this episode, a 15 year old boy from South Wales, Rhys Morgan, showing remarkable maturity and ability for some one so young, pointed out the problems that could be caused by a putative remedy for Crohn's disease that was being publicised on an online forum for people with Crohn's. Rather than being commended for his actions in exposing a dangerous treatment that could have harmed patients, he ended up being banned from the group. To learn more about this episode, take a look at Rhys' video blog about the affair.
As part of a session on primary care data in the Health Informatics module on the Imperial Master of Public Health Programme, I asked students to work in two groups to present arguments for and against the NHS Care.Data programme. Care.Data is an NHS programme that will extract data from the medical records held by general practitioners (GPs) in England. The Care.Data programme takes advantage of the very high level of use of electronic medical records by GPs in England. After extraction, data will be uploaded to the NHS Health and Social Care Information Centre (HSCIC). The data will then be used for functions such as health care planning, monitoring disease patterns and research. The programme has been controversial with proponents arguing that the programme will bring many benefits for the NHS and the population of England; and opponents arguing it is a major breach of privacy. You can view the two presentations to help inform you further about these arguments: Arguments fo...
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