Electronic health databases that contain data obtained from health records generated by routine clinical practice are widely in biomedical research. Because of the large number of patients in such databases and long patient follow-up, these databases have unique characteristics that are very valuable for academic researchers. An article published recently in PLoS One describes the use of the United Kingdom's General Practice Research Database (GPRD). The authors identified 749 studies published between 1995 and 2009 based on the GPRD. The studies included authors from 22 countries published in 193 journals across 58 study fields The findings of the study illustrate how valuable the data collected in UK primary care by primary care teams is for research and public health.
As part of a session on primary care data in the Health Informatics module on the Imperial Master of Public Health Programme, I asked students to work in two groups to present arguments for and against the NHS Care.Data programme. Care.Data is an NHS programme that will extract data from the medical records held by general practitioners (GPs) in England. The Care.Data programme takes advantage of the very high level of use of electronic medical records by GPs in England. After extraction, data will be uploaded to the NHS Health and Social Care Information Centre (HSCIC). The data will then be used for functions such as health care planning, monitoring disease patterns and research. The programme has been controversial with proponents arguing that the programme will bring many benefits for the NHS and the population of England; and opponents arguing it is a major breach of privacy. You can view the two presentations to help inform you further about these arguments: Arguments for th
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